Publications

Publications

This page lists the articles and white papers authored by the Center's faculty investigators. For additional publications from the Center, visit our blogs Center Reports page, our blogs (Indiana Bioethics and PredictER Blog), and the PredictER News Brief.

Publications - 2009

Sly PD, Eskenazi B, Pronczuk J, Srám R, Diaz-Barriga F, Machin DG, Carpenter DO, Surdu S, Meslin EM. Ethical issues in measuring biomarkers in children's environmental health. Environ Health Perspect. 2009 Aug;117(8):1185-90. Epub 2009 May 6. Abstract...

Drabiak-Syed, K. State codification of federal regulatory ambiguities in biobanking and genetic research. The Journal of Legal Medicine. 2009; 30:299-327.Abstract...
Green RC, Roberts JS, Cupples LA, Relkin NR, Whitehouse PJ, Brown T, Eckert SL, Butson M, Sadovnick AD, Quaid KA, Chen C, Cook-Deegan R, Farrer LA; REVEAL Study Group. Disclosure of APOE genotype for risk of Alzheimer's disease. N Engl J Med. 2009 Jul 16;361(3):245-54. Abstract...
Schwartz, PH. Disclosure and rationality: Comparative risk information and decision-making about prevention. Theor Med Bioeth. June 2009; 30:199-213. Abstract...
Vreeman, RC, Nyandiko, W, Meslin EM. Pediatric assent for a study of antiretroviral therapy dosing for children in western Kenya: a case study in international research collaboration. Journal of Empirical Research on Human Research Ethics. 2009;4(1):3-16. Abstract...
Haas DM, Jamie L. Renbarger, JL, Denne, S,. Ahmed, MS, Easterling, T, Feibus K, Meslin EM, Koren G, Zajicek A, Snodgrass, WR, Flockhart DA. Summary of Proceedings of the First International Conference for Individualized Pharmacotherapy in Pregnancy, Clinical and Translational Science (2009); 2:11-14 [Published Online: 18 Feb 2009] 10.1111/j.1752-8062.2009.00079.x Abstract...

Publications - 2008

Dure, LS, Quaid KA, Beasley, TM. A pilot assessment of parental practices and attitudes regarding risk disclosure and clinical research involving children in Huntington disease families. Genetics in Medicine. November 2008; (11):811-9;
Haas DM, Renbarger JL, Meslin EM, Drabiak K, Flockhart D. Patient Attitudes Toward Genotyping in an Urban Women's Health Clinic. Obstetrics & Gynecology. November 2008; pgs. 1023-1028. Abstract...
Meslin EM. Bioethics and Imagination. Spirit and Place Festival. Exploring Imagination: A Civic Collaboration of the Arts, Humanities and Religion. 2008. Full Text...
Meslin EM. The stem cell decade: What have we learned? J of Cardiovasc Trans Res. 2008; Abstract...
Meslin EM, Dickens, BM. Research Ethics. Singer PA, and Viens AM, eds. The Cambridge Textbook of Bioethics: Cambridge. Cambridge University Press. 2008; 187-193.
Meslin EM, Rooney PM, Wolf JG. Health-related philanthropy: Toward understanding the relationship between the body (and its parts) and traditional forms of philanthropic giving. Nonprofit and Voluntary Sector Quarterly. 2008;37(1):44S-62S. Abstract...
Caulfield T, McGuire AL, Cho M, Buchanan JA, Burgess MM, Danilczyk U, Diaz CM, Fryer-Edwards K, Green SK, Hodosh MA, Juengst ET, Kaye J, Kedes L, Knoppers BM, Lemmens T, Meslin EM, Murphy J, Nussbaum RL, Otlowski M, Pullman D, Ray PN, Sugarman J, Timmons M. Research ethics recommendations for whole-genome research: consensus statement. PLOS Biology. 2008;25;6(3):e73. Abstract...
Schwartz PH, Meslin EM. The ethics of information: Absolute risk reduction and patient understanding of screening. J Gen Intern Med. 2008;. Abstract...
Quaid KA. Ethical and Legal Issues in Molecular Testing. Cheng and D. Zhang, eds. Essentials of Molecular Genetic Pathology. Humana Press. 2008; pgs. 731-736.
Quaid KA, Cushman, L. Genetic Counseling. Cheng and D. Zhang, eds. Essentials of Molecular Genetic Pathology. Humana Press. 2008; pgs. 405-413.
Oster E, Dorsey ER, Bausch J, Shinamen A, Oakes D, Shoulson, I, Quaid KA and the Huntington Study Group PHAROS investigators. Fear of Insurance Loss and Psychological Factors Among Individuals At Risk for Huntington Disease. American Journal of Medical Genetics. 2008; Abstract...
Quaid KA. Living at risk: Concealing risk and preserving hope in huntington disease. J Gen Counsel. 2008;17:117-128 (Accepted 28 September 2007/Published online: 18 October 2007) Abstract...
Meslin EM, Johnson S. Codes, Declarations, and Other Ethical Guidance for Research With Humans. National Bioethics Commissions and Research Ethics. In: The Oxford Textbook of Clinical Research Ethics. New York, NY: Oxford University Press; 2008;187-197. Abstract...

Publications - 2007

Schwartz, PH, Meslin EM. New Technique is a Promising Pathway to Cures. Indianapolis Star. 2007 December.
Schwartz, PH. Silence About Screening. (Open Peer Commentary) American Journal of Bioethics. 2007. (7): 46-48.
Schwartz, PH. Decision and Discovery in Defining Disease. H. Kincaid and J. McKitrick, eds. Establishing Medical Reality: Essays in the Metaphysics and Epistemology of Biomedical Sciences, Dordrecht. Springer. 2007. pps. 47-64.
Meslin EM. Ethical Implications of Science's Plans for Our Well-Being. Indianapolis Star. 2007 April.
Caulfiled T, Brown R, Meslin EM. Challenging a well established consent norm?: One time consent for biobank research. JIBL. 2007;4(1):69-74. Abstract...
Stanley, FJ, Meslin EM. Australia needs a better system for health care evaluation. Med J Aust. 2007;186(5): 220-1. Abstract...
Schwartz PH. Defining dysfunction: Natural selection, design, and drawing a line. Philosophy of Science. 2007;74:364-385. Abstract...
Schwartz PH. Stem cells: Biopsy on frozen embryos. Hastings Center Report. 2007; Vol. 37 Issue 1, p7-8, 2p. Abstract...
Evans BJ. Distinguishing product and practice regulation in personalized medicine. Clin Pharmacol Ther. 2007;81(2):288-93. Abstract...
Helft PR, Champion VL, Eckles R, Johnson CS, Meslin EM. Cancer patients' attitudes toward future research uses of stored human biological materials. JERHRE. 2007; 2(3):15-22. Full Text

Publications - 2006

Moreno JD and Meslin EM. Matters of "life" and "death."Hastings Center Report. 2006;May-June:2-5.
Evans, BJ and Meslin, EM. Encouraging translational research through harmonization of FDA and common rule informed consent requirements for research with banked specimens. J Leg Med. 2006;27(2):119-66.
Sidle JE, Were E, Meslin EM., et al. A needs assessment to build international research ethics capacity. Journal of Empirical Research on Human Research Ethics. 2006;1(2): 23-38.
Meslin EM. Shifting paradigms in health services research ethics: Consent, privacy, and the challenges for IRBs. J Gen Intern Med. 2006;21(3):279-80.
Meslin EM. Salmon KR, and Eberl J. Eligibility for Organ Transplantation to Foreign Nationals: The Relationship Between Citizenship, Justice, and Philanthropy as Policy Criteria. In: Keith Wailoo, Julie Livingston, and Peter Guarnaccia, eds. A Death Retold: Jessica Santillan, the Bungled Transplant, and the Paradoxes of Medical Citizenship. Chapel Hill: Univ. of North Carolina Press; 2006.
Eckles RE, Meslin EM, Gaffney M, and Helft P. Medical Ethics Education: Where are we? Where should we be going? A review. Academic Medicine. 2006;80:12(December 2005).
Shaffer DN, Yebei VN, Ballidawa JB, Meslin EM et al. Equitable treatment for HIV/AIDS clinical trial participants: A focus group study of patients, clinician researchers, and administrators in Western Kenya. J Med Ethics. 2006;32:55-60. doi: 10.1136/jme.2004. 011106.

Publications - 2005

Lavery JV, McDonald M and Meslin EM. Research Ethics Across the 49th Parallel: The Potential Value of Pilot Testing "equivalent protections" in Canadian Research Institutions. Health Law Rev. 2005;13(2-3):86-96.

Publications - 2004

Meslin EM, Quaid KA. Ethical issues in the collection, storage, and research use of human biological materials. J Lab Clin Med. 2004;144:229-34.
Evans BJ, Flockhart DA and Meslin EM. Creating incentives for genomic research to improve targeting of therapies. Nature Medicine. 2004;Vol. 10; Number 12.
Fife R, Keener P, Meslin EM et al. Faculty Ownership of Medical Facilities: Inappropriate Conflict or an Opporuntity that Benefits Physcians and Patients? Academic Medicine. 2004;Vol. 79; No. 11.
Caulfield Knowles L and Meslin EM. Law and policy in the era of reproductive genetics. J Med Ethics. 2004;30414-41. doi: 10.1136/jme.2002. 001370.
Quaid KA, Jessup NM and Meslin EM. Disclosure of genetic information obtained through research. Genetic Testing. 2004; Vol. 8 No. 3.

Publications - 2003

Meslin EM. Bioterrorism and bioethics: Challenges for industry, government and society. J of Commercial Biotechnology. Vol. 9 No. 2 101-109.
Meslin EM, Martin SE. From stem to stern: A brief review of ethical issues in the stem cell debate. NeoReviews. 2003;Vol. 4. No. 7.